Almost 6 months back I got asked why we would need money to help our son. I got comments like Autism Speaks is a good place to donate money, donate buttons on blogs are tacky, the district pays for everything he needs etc. Well where is Autism Speaks when my insurance won't pay for a Nutritionist? They will only pay for a kid who has diabetes but NOT a kid with Celiacs. I've been arguing all morning. A kid who cant have sugar is covered but a kid who cant eat WHEAT is not. So because my kid doesn't have a mainstream issue I have to shell out $300 a visit? You can say just skip the nutritionist but he has the protein issue too.....how can I know whats a good amount of protein unless I go to a nutritionist?
I'm so angry. I'm angry because Diabetes is covered and Celiacs isn't. Plain and simple, I hate health insurance and I hate that Autism Speaks will raise 78 million dollars and us parents who need the help will see $0. Thanks for the Awareness
I totally understand your frustration. I am in the same position too. I'm paying $175 for OT at a sensory gym because the school does not have a provider yet and I have to raise hell at the district office to get a RSA letter. Planning on raising hell soon. Autism is big business and if you're just a regular working class Jane, it's tough to keep up. It's between paying a bill or paying for the services I know will help my son. So if you get a money tree, let me know - I'll be over!
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