Showing posts with label advocate. Show all posts
Showing posts with label advocate. Show all posts

Monday, December 3, 2012

Colorful Language

So After just posting how i wasn't going to be all Negative Nelly.....I have Stories lol.

So this year the boy is in a 12:1:2 (sort of) that has 12 kids in the morning, 6 typical, 6 ASD with a Spec. Ed teacher, regular pre-k teacher and 3 aids.  Then in the afternoon is the 6 ASD boys alone with one Spec. Ed and 3 T.A's

After that background, last year he was in self contained with kids with multiple different delays, all sweet, all pretty amazing.  This year he is with at least 2 kids that have some tough behavioral issues....one of which is Cursing.

Yes, my son speaking is a blessing, he has come so far but the day he says "Shut the F- Up".....well thats the day I wish he would stop talking.  I ignore the behavior, but now im finding myself warning people he may say it to take the blame off myself.  All I coudl think was, what if he goes to Sunday school and says that???  Will they think he hears that at home...AHHHHHH.

Recently he has also told me he is going to throw me in the garbage and in the photo above he was telling me he was going to squish me.  I just keep tellign myself that 2 years ago, he grunted and jumped in place....I should be happy he wants to express to me that he is pissed and wants to throw me in the garbage and that I should Shut the F- up.

God Help me..... lol.....


Friday, June 24, 2011

CSPSE.......

CPSE = Committee for Pre-School Special Education.....I'm not sure how things go in other states since I'm new to all this but I can explain NY for you.  Between the ages of Birth - 3 your child falls under the care of Early Intervention which is run by your county (mine being Nassau).  Lucky for us, we live in the 3rd most expensive County in the country, we have the highest taxes and because of this kids in our area can get amazing services between the ages of 0-3.  When your child turns 2.6 years old its time to start the transition into the school district so that by the time they are 3, the county is no longer paying, but the district is.  Once again I am blessed to be renting in a town with high taxes :)  Before your child's 3rd birthday you must have a CPSE meeting to determine what services the district is willing to provide for your child.

Today was my CPSE meeting.  Now, because I know I was in a decent district and my son had preformed pretty bad on some of his new evaluations I was walking in trying to be laid back.  I knew what I wanted, full day pre-school with at least 5 hours of ABA at home.  I was warned that they probably would say no to home therapy, but I could ask.  I thought the hardest part would be arguing for home service, but no, the hardest part was being read the findings of my sons evaluations.  I knew he didn't do his best, I had read them over and over myself and absorbed it.  It wasn't until a complete stranger read every weakness my son had out loud, page after page that I literally felt like I was having an out of body experience.

When LP was born I knew I would be his biggest fan, but when people told me I would have to be his advocate I really didn't think this was for me.  Somehow during my Out of Body Experience , out came this person I didn't know.  Truth is, I am awkward and I hate to talk in public around people I don't really know about something I don't know everything about.  Today though, I looked up at a bulletin board, saw a  lady bug push pin (lady bugs have always been a God Wink for me), opened my mouth and out came everything I had to say without an ounce of shakiness to my voice.  Somehow I got through it, sounding intelligent and persistent and in turn got full day pre-school with the possibility of home ABA.  The possibility is huge, because they didn't say no.....they didn't say yes....but they didn't say No.


My advice for those parents going through this is to know that its stressful, but in times of stress, the spirit can do amazing things.  You never doubt your child, so never doubt yourself.  You are your child's voice and if you love that child, I promise the words will come out.  Fight forever and never back down.