With that said, I love my son. I love every inch of him, his crazy hair, olive skin, little cracked toe nail, beauty mark on his cheek. I love his giggle and smile, his imagination and his affection.....but if I was to say I don't exactly Love his Autism, I feel like I will be shunned by the autism community.
Many times I have read the whole "I would never change my child for anything" blogs and comments....all I think is you can't be serious, your so Full of It.
I've been having a crappy few days. This week my son went to school four days....and three of those days he bit someone. I don't love this aspect of Autism and I wish I could shout it from the roof tops with out feeling like a bad mother.
Day in and day out us parents work our butts off to help our children and there are some of us who will see little progress and others who will be stuck at a plateau for years. Why can't I say I'm frustrated? Why am I not allowed to murmur that this is not how I expected parenting to be. Why can't I say that it hurts me to see my child having a tough time.
If you sit here and look me in the eye and say you never regretted a moment of this, that you never wish you could change one little second of your child's life with Autism....I say to you, your full of it.
Here it is, here is my confession, I love my son but there are things I wish I could have changed:
I wish I never had to watch my son be in pain because he couldn't communicate. I wish he didn't eat crayons because he didn't know how to ask me for food. I wish I wasn't as hard on him, because I didn't know. I wish he didn't have to waste his babyhood in a room going through hours of therapy. I wish I didn't have to put my baby on a bus for full day school. I wish my son got invited to birthday parties. I wish my son understood biting hurt people. I wish he understood telling me he wanted me to die hurt me......I could go on.
Every Ounce of my being loves that little boy. At the same time, I think its ok for us parents to admit its not all peaches and cream, sunshine and rainbows. Its ok to say sometimes Autism sucks, it sucks because it hurts my baby, but I LOVE him no matter what <3
Thank you. You can love your child and hate the autism. You can! I see it said that you can't love your child and not love her autism. Really? So if I love my husband I must also love the fact that he leaves his dirty socks on the floor? And if I hate the way he leaves dirty socks on the floor then I must hate my husband too? It makes about that much sense.
ReplyDeleteI did an entire blog post about this. Sometimes autism just sucks and there are no two ways about it.
ReplyDeleteWhy I think it is okay to hate autism ...