Full of it....

 For the last few years I have read many different blogs from all ends of the blog spectrum.  The cureers, the bio-med types, the anti vaxers, the genetics causers, etc. etc. and at the end of the day we all love our kids.

With that said, I love my son.  I love every inch of him, his crazy hair, olive skin, little cracked toe nail, beauty mark on his cheek.  I love his giggle and smile, his imagination and his affection.....but if I was to say I don't exactly Love his Autism, I feel like I will be shunned by the autism community. 

Many times I have read the whole "I would never change my child for anything" blogs and comments....all I think is you can't be serious, your so Full of It.

I've been having a crappy few days.  This week my son went to school four days....and three of those days he bit someone.  I don't love this aspect of Autism and I wish I could shout it from the roof tops with out feeling like a bad mother. 

Day in and day out us parents work our butts off to help our children and there are some of us who will see little progress and others who will be stuck at a plateau for years.  Why can't I say I'm frustrated?  Why am I not allowed to murmur that this is not how I expected parenting to be.  Why can't I say that it hurts me to see my child having a tough time. 

If you sit here and look me in the eye and say you never regretted a moment of this, that you never wish you could change one little second of your child's life with Autism....I say to you,  your full of it.
Here it is, here is my confession, I love my son but there are things I wish I could have changed:

I wish I never had to watch my son be in pain because he couldn't communicate.  I wish he didn't eat crayons because he didn't know how to ask me for food.  I wish I wasn't as hard on him, because I didn't know.   I wish he didn't have to waste his babyhood in a room going through hours of therapy.  I wish I didn't have to put my baby on a bus for full day school.  I wish my son got invited to birthday parties.  I wish my son understood biting hurt people.  I wish he understood telling me he wanted me to die hurt me......I could go on. 

Every Ounce of my being loves that little boy.  At the same time, I think its ok for us parents to admit its not all peaches and cream, sunshine and rainbows.  Its ok to say sometimes Autism sucks, it sucks because it hurts my baby, but I LOVE him no matter what <3

Dear God, don't let me forget about my daughter

I wonder how siblings to Autistic children feel. I pray everyday that I don't put my daughter second, that I don't forget her in the chaos. She has grown so fast, and I can't help but feel like her first year is overshadowed by an Autism diagnosis. Just shy of her turning 4 months old our world was changed and I began a crusade to help my son, with an infant strapped to my chest on a Moby wrap.

Sometimes I feel like I put him first, my worry, my time, my fears, all about him. Recently she has begun screaming, attention screaming. The kind of screaming that makes you cringe, all because she wants you took look at her. She is refusing whole milk and now foods she use to eat. I just keep thinking whatever she will grow out of is and get more worried about Frankies non eating and behavioral issues. My big fear is that even though she is talking, maybe she too is having sensory issues and I will miss it because I'm so wrapped up in the boy.

I love them both, just the same. I know I am a good mommy to them both, but it's a fear. A fear I'm sure many of us have even with only typical kids. I wish we got grades on parenting so I could see my performance in grade form. I pray I am a good mommy to my babies, that I never put one before the other and that they both understand the love I have for them in eternal and never ending.....even when mommy is having a grumpy day <3

Prisoner

Does anyone else ever feel like a Prisoner in their own home because of Home Services?  My 720sq foot home is getting to me today.  I use to have days where I could get out at least in the afternoon, but now with the new summer schedule I'm pretty screwed.  I guess I'm just sad that I have a 2-3 hour gap between morning therapy and afternoon therapy and they by the time the last one is over its 3:30.

I feel like my son has had the crappiest summer ever.  3 Hours just isn't enough to go to the beach, maybe enough to go to the pool but I feel so rushed.  It's no ones fault I guess, I'm just down about it.  Today for example I projected my anger on my husband.  He goes to his MMA/Brazilian Jui Jitsu classes in the morning when LP has therapy and then at night if he is off from work.  So today of course I am a huge bitch and i go off about us not doing anything today.....to which is says "well what do you want to do, I suggested going swimming and you said no".  Grrr got me there I did say no.  Truth is I don't even know what I want to do, I just want to not look at these walls.  I said "i want to go out too and do things.  I want to go get my nails done"....to which he replies, "ok, i will take the kids go get your nails done." I said no.  "Hey do you want to go to that bar your cousin is guest bartending at.  Leave the kids for a little" he asks.  Again I say NO.....DAMN IT, I'm too controlling to leave the kids.  

I am so controlling, I need to control all situations.  I complain because I want to do things, but given the opportunity I don't because I cant handle not being in control of the kids.  I'm probably doing my husband a disservice since I don't let him do anything.  Well I let him to dishes, make money, put things together and put LP to sleep.

So really I do this to myself.  But honestly, I wish I had more time to do things with LP.  I'm so sad about him starting school I am holding back tears.  Its just not fair.  I hate you Autism

It's July 1st

In 2 months and 6 days my first born child will get on a bus and go to school. While of course this is the best thing for him......I still don't want him to go :(. This is one of the main reasons I hate Autism. At 3 years old I have to send my baby to full day pre-school 5 days a week. While everyone else is still home with their 3 year olds, mine is getting daily OT,PT, speech and home ABA therapy.

I'm excited to know that he will learn so much, and learn to socialize with other kids. I'm glad that he will learn to sit at a table with other children with out having anxiety. I'm happy I can get a break and pursue some business ventures.

Things will be ok, this is a new chapter ......but like my son I am very uncomfortable with change.

Allow me to re-introduce myself my name is.......Mom

My name is Mom......Neurotypical Mom. The Mother of a soon to be 3 year old son on the spectrum and a (so far) NT 9 month old daughter. The Wife to a wonderfully different husband, who after much research, we believe is also on the spectrum.

Life has not been easy, but I dont think its suppose to be. Everyday is something new, good and bad. Even with the struggles, I would never change a thing......this is our life, this is our story.

I love you all.....

<3 NT MOM